I got to hold Izzy today while Klay was working and she is so sweet! She kept doing little smiles, it made my heart happy.
They took out the IV in her head today because she is no longer on antibiotics. They debated leaving it in because she's right on the verge of needing a blood transfusion, but it turns out they couldn't give blood through the extended dwell so they just took it out anyway.
They did labs this morning and some of her cell counts were high, they said it looked like she might be fighting a virus now. They did a urinalysis to check, but luckily everything was negative on that! They are considering starting steroids tomorrow to help her get off the vent, but I'm hesitant for them to do that. Last time they gave her steroids it weakened her immune system enough that she got pneumonia, so if she has a virus it makes me really nervous. I talked to the nurse and they're going to talk about it in rounds in the morning, so we'll see tomorrow what they decide!
It's really hard with Izzy because usually they just give babies caffeine that stimulates their lungs to keep breathing. With Izzy's heart condition they can't give her the caffeine because it raises her heart rate too much so we're kind of stuck. They say around 34-35 weeks the need for caffeine usually drops off, so we may have to wait until then for her to get off the vent, we'll see.
They took out the IV in her head today because she is no longer on antibiotics. They debated leaving it in because she's right on the verge of needing a blood transfusion, but it turns out they couldn't give blood through the extended dwell so they just took it out anyway.
They did labs this morning and some of her cell counts were high, they said it looked like she might be fighting a virus now. They did a urinalysis to check, but luckily everything was negative on that! They are considering starting steroids tomorrow to help her get off the vent, but I'm hesitant for them to do that. Last time they gave her steroids it weakened her immune system enough that she got pneumonia, so if she has a virus it makes me really nervous. I talked to the nurse and they're going to talk about it in rounds in the morning, so we'll see tomorrow what they decide!
It's really hard with Izzy because usually they just give babies caffeine that stimulates their lungs to keep breathing. With Izzy's heart condition they can't give her the caffeine because it raises her heart rate too much so we're kind of stuck. They say around 34-35 weeks the need for caffeine usually drops off, so we may have to wait until then for her to get off the vent, we'll see.
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